Well Kambry's been off ECMO for 48 hours and I'm just finally getting around to writing a blog post. I'm sorry to leave everyone hanging! Kambry is doing pretty well of ECMO. Today started out a little crazy. She was extremely agitated which increases her blood pressure and heart rate and lowers her oxygen saturation levels. Basically, everything we don't want. So they were really working on making her comfortable. Her normal pain meds just weren't really working anymore. The thing is, Kambry's got a little monkey on her back. In the process of managing all the pain she's had in the first few weeks of life, we've developed a little addict who will eventually have to be weaned off these narcotics. Her body became immune to the pain medication they were using, so they needed to switch to something else. The nurses spent a good portion of the day working on getting her comfortable and happy. They're starting to get us involved in her care now. When she was really upset they asked me to calm her. I had her hold on to my finger while I rubbed her little hand until she fell asleep. It was a really cool moment as a mom to finally be able to feel like I'm helping her.
This evening Kambry is finally in a good place and all of her vitals look great. The nurses write down her daily goals and today's goals were to stay comfortable and keep urinating. Oh the life of a baby. I'm just imagining Lon jumping into his big brown truck, buckling up, grabbing the diad and the only instructions on it are to stay comfortable and keep urinating. My how life changes. Anyway, I'd say Kambry met today's goals. She's a peeing machine now! Way to go prayer warriors! :)
We had more visitors this weekend. My brother Tyler and his family drove here from Minneapolis. Kambry is so lucky to have so many people that want to love on her. And Lon and I are fortunate to have had so much family around to support us. Not only down here but back home as well. My sister Megan took Asher in for a few days, then a lake weekend with Grandma Angie, and now he's with Lance and Jill until Lon gets home. I'd love to say he really misses us, but judging by the pictures we've received I'm not so sure. But I'm glad he's happy and in good hands (and clearly full of sugar). I miss him like crazy and can't wait to see him again!
Lots of love to you all!